Are any of you reading Jaymun's Journey? It's an amazing story of a little boy born with a very rare type of leukemia. He survived the first attack and the family enjoyed a year of remission, but now it's back and his dad is practically begging the drug companies and researchers for help. It's to the point where the treatments that are offered to them are not going to cut it. To quote Jaymun's dad, "Today, with Refractory, Relapsed, Congenital Acute Myeloid Leukemia - we are not given a percentage. I do not think there actually are any statistics for us. What do we have - 1/2% ?" But there is something out there that will help them, but it's in the research stages, but it's their only hope.
I'm not trying to collect money for them - they've never asked for money. Right now it seems like the dad is begging for this drug to help his son. This drug that is not available to him, so instead he's right on track for dying.
"It seems to me that Jaymun is the "least powerful" person in America right now ...laying helplessly in a hospital bed depending on good people to do what is best for his life. His body can't take much more chemo. He has no white cells. He is septic for six days already. His CNS blasts were rising, and we have already skipped two taps (and chemo treatments) because of his sepsis.
I mentioned that Jaymun is the least powerful. We know God is the most powerful so we asked God to help us. Many times God helps by having the right people get the job done. Are there are some powerful people who could sacrifice some of their time and resources ...to be God's heros, to rescue the life of a little powerless boy?"
I cannot recap all of the medical information his Dad has been researching frantically. There is something out there that can help this little boy. And his dad writes about it here and here.
Who can help? Would it help if we spread the word across the Internet? I average about 40 site visits a day - how many do you get? What if you posted a link to Jaymun's Journey? What if we all wrote letters to those people his dad mentions in his posts? Would that help? Is it worth the try? Maybe someone who reads your blog knows how to help. Knows who to talk to in order to help this little boy? Would it hurt to try?
I'm writing emails to a few of the Big Blogs (dooce and bossy) asking them to help...we'll see if this can go anywhere. I feel like I have to do something. Do you?
What we need to do, I think, is to send letters, or emails, to the doctor in charge of the research that this dad believes will help him. I'm going to work on figuring out how to contact him. I wonder if the dad has tried this already? I'm going to look into this tonight and hopefully have something put together Tuesday morning. hopefully.
Showing posts with label help. Show all posts
Showing posts with label help. Show all posts
Sunday, June 29, 2008
Thursday, June 26, 2008
Yeah, but is there a size 2.5?
Alright, I'm looking for some help. Any of you wear your babies in a sling? Your older babies?
Target now sells hotslings and since the last sling I had was way too big and uncomfortable I picked two up - two different sizes to try out. And I can't decide which works better. One day I think the smaller one is good and comfortable - the next day it's the bigger one. This has been going on for over a week and I need to decide - so I did what any blogger would do. I took some crappy pictures of myself with the two different sized slings on (and baby). What looks good to any of you? Any opinions? Go small? Go big? or just go home?
Target now sells hotslings and since the last sling I had was way too big and uncomfortable I picked two up - two different sizes to try out. And I can't decide which works better. One day I think the smaller one is good and comfortable - the next day it's the bigger one. This has been going on for over a week and I need to decide - so I did what any blogger would do. I took some crappy pictures of myself with the two different sized slings on (and baby). What looks good to any of you? Any opinions? Go small? Go big? or just go home?
Pictured below is Size 3 - which felt good yesterday and Monday.
I really like the way the hotsling feels - it's even got some padding for the babies legs. Just not sure which size to go with. My height/weight puts me in the sizing for either size 2 or size 3 - I love when that happens.
Oh - and it's really hard to take a picture without a flash while holding a baby - sling or no sling.
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