Can you help me help them?

Are any of you reading Jaymun's Journey? It's an amazing story of a little boy born with a very rare type of leukemia. He survived the first attack and the family enjoyed a year of remission, but now it's back and his dad is practically begging the drug companies and researchers for help. It's to the point where the treatments that are offered to them are not going to cut it. To quote Jaymun's dad, "Today, with Refractory, Relapsed, Congenital Acute Myeloid Leukemia - we are not given a percentage. I do not think there actually are any statistics for us. What do we have - 1/2% ?" But there is something out there that will help them, but it's in the research stages, but it's their only hope.

I'm not trying to collect money for them - they've never asked for money. Right now it seems like the dad is begging for this drug to help his son. This drug that is not available to him, so instead he's right on track for dying.

"It seems to me that Jaymun is the "least powerful" person in America right now ...laying helplessly in a hospital bed depending on good people to do what is best for his life. His body can't take much more chemo. He has no white cells. He is septic for six days already. His CNS blasts were rising, and we have already skipped two taps (and chemo treatments) because of his sepsis.
I mentioned that Jaymun is the least powerful. We know God is the most powerful so we asked God to help us. Many times God helps by having the right people get the job done. Are there are some powerful people who could sacrifice some of their time and resources ...to be God's heros, to rescue the life of a little powerless boy?"

I cannot recap all of the medical information his Dad has been researching frantically. There is something out there that can help this little boy. And his dad writes about it here and here.

Who can help? Would it help if we spread the word across the Internet? I average about 40 site visits a day - how many do you get? What if you posted a link to Jaymun's Journey? What if we all wrote letters to those people his dad mentions in his posts? Would that help? Is it worth the try? Maybe someone who reads your blog knows how to help. Knows who to talk to in order to help this little boy? Would it hurt to try?

I'm writing emails to a few of the Big Blogs (dooce and bossy) asking them to help...we'll see if this can go anywhere. I feel like I have to do something. Do you?

What we need to do, I think, is to send letters, or emails, to the doctor in charge of the research that this dad believes will help him. I'm going to work on figuring out how to contact him. I wonder if the dad has tried this already? I'm going to look into this tonight and hopefully have something put together Tuesday morning. hopefully.